Special Issue of the Journal of Disability Policy Studies
End-of-Life Issues and Persons with Disabilities
Bioethicists as well as health and mental health professionals often couch end-of-life issues in terms of quality-of-life, autonomy, and personhood. These issues are frequently seen quite differently by people with disabilities. Often, people with disabilities report that, from their perspective, health care professionals and bioethicists have written off their concerns as unimportant and that they demonstrate a striking lack of understanding of the social context of disability. As an attempt to bring divergent perspectives together in one place, this special issue will provide a forum for discussion of diverse perspectives, primarily from the point of view of people with disabilities/disabled people on end-of-life issues. One purpose of this journal issue is to make available material about end-of-life issues that can be useful to policy makers and which, to that end, reflects the perspectives of people with disabilities as well as those of health care professionals, bioethicists and related professionals.
For this special issue, we seek manuscripts of the following types, all of which should either incorporate the social model of disability or demonstrate an understanding of it (generally as practiced in the field of Disability Studies) and accord social model perspectives legitimacy: (a) papers describing case examples of end-of-life issues, including first person accounts; (b) empirical investigations of end-of-life related areas of concern to persons with disabilities; and (c) policy papers analyzing end-of-life issues, including service and funding concerns and (d) advocacy papers for specific end-of-life issues.
Authors are encouraged to submit four (4) copies of manuscripts to Timothy H. Lillie, Ph.D., Special Issue Co-Editor, Department of Curricular & Instructional Studies, The University of Akron, Akron, OH 44325-4205. A 3.5 inch floppy disk with an electronic version of the document, in Word 2000 format, must be submitted within two weeks of acceptance of the paper. All manuscripts should be prepared using APA-style (5th ed.) and allow for blind review (complete author information, including contact information for first author on the title page; author names should not appear on other pages of the manuscript). Manuscripts should be no longer than 20-25 pages total.
Contact the first editor (Dr. Lillie) for questions concerning format and style, especially if the author is not an academic author. For other questions, contact either Timothy Lillie (330-972-6746 or e-mail: tlillie@uakron.edu) or James L. Werth, Jr., Ph.D. (330-972-2505 or email: jwerth@uakron.edu). Due date for submission of manuscripts is April 1, 2003.
Timothy Lillie, PhD
Dept. of Curricular & Instructional Studies
The University of Akron
Akron OH 44325-4205
330-972-6746 (Voice)
330-972-5209 (Fax)
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